Monday, November 30, 2009

Ahh, the clarity of hindsight (or, how I became the crazy mother)

As many of you may know, November is Prematurity Awareness Month (although it shares the month with diabetes, lung cancer, COPD, hospice, and Alzheimer's Disease... And lots of other happy things...)

So, in the name of prematurity awareness, I want to share part of my story with you guys in hopes that others will learn from my mistakes, and maybe some kid somewhere will be born healthier and happier for me doing so. Other preemie parents out there, I urge you to do the same on your blogs and maybe an expectant mother out there will learn that one thing that will keep her from walking in our shoes...

I think most mothers who have been down this road look back and see things that they think they should have seen back then. I guess that's true with most situations... But even though I can't go back and change the path of my pregnancy, if you know anyone, ANYONE who is having twins, or is experiencing the same issues I was, please help them be informed (Notice I said "inform" and not "scare." There is a difference.) Multiples are at a higher risk and should be treated as such.

So here's my story.

We found out we were pregnant in November of 2007. As soon as we found out I picked the new OB in a very reputable office. The doctor was young and I felt she would be fresh on all the new techniques and procedures, and she would also have the more experienced doctor in her office to rely on if she was unsure about something. I made an appointment with her and began the wait.

I bought loads of pregnancy books and started obsessing over foods. I based my meals and snacks around getting all my nutrients and eliminated artificial sweeteners and unheated deli meats. No caffeine for me, lots and lots of water and orange juice, and just the right amount of exercise. Oh, and when they say 12 oz of low-mercury fish, believe me when I say I had 12oz, no more, no less, of fish a week. And I started eating 4 apples a week because the latest research had shown it decreased the risk of asthma by some crazy percentage. I was a woman obsessed.

Then I started having some bleeding...

It was mostly dark brown. I had two or three pregnancy books I read daily, and all of them said bleeding is never a good thing, but it is a common thing. Dark brown is better than bright red. I called The Doctor after three days to see if I should come in, and The Nurse told me that if it worried me I could go to the ER.

Okay, wait, you tell me if I should be worried. This is during business hours. I can come in. Should I worry, or is this normal?

The Nurse then said if it continued for 3 more hours to go to the ER. Okay, I've been bleeding for three days. What makes three more hours so different?

But I just said okay. I didn't argue.

I had no answers when I got off the phone, and I was frustrated, so I called my PCP. The actual PCP called me back within 10 minutes, and actually gave me information I could use. Yes, brown blood is common, yes it might be a miscarriage but there is nothing that can be done to stop it at this stage of the pregnancy so just take it easy and go into the ER if the bleeding gets substantially worse.

Wow, a real answer. A real plan. I could live with that.

So a week or so later it was time for my first OB appointment. They set up an appointment for the next month then sent me for an ultrasound since I was still having some bleeding.

And that's when we found out our little peanut was actually two little peanuts. :) We were 6 weeks pregnant with twins! We had wanted twins so badly, and it was just surreal.

The next morning I called my OB and spoke with The Nurse again. I told her it was twins and that I knew how common it was for a baby to just disappear during the first trimester, and we wanted to do everything possible to keep them both in there and healthy. Can we move up our next appointment? See the doctor more frequently? Are there any additional supplements I need to be taking? Any extra precautions?

"Those all sound like good questions to ask The Doctor at your next appointment," she replied.

And I didn't argue. I was frustrated but I just let it go.

A week later I started bleeding again. Red this time, and more than before. I freaked out and they sent me in for another ultrasound. Everyone was still there and accounted for. Phew.

I had a follow-up appointment with the OB the next day and she told me then that I needed to take more folic acid since it was twins. I asked about seeing her more frequently and she said they typically start seeing the mother twice monthly starting at 24 weeks due to the increased chance of prematurity.

And I say ok.

Over the next few months the same types of issues continue to arise. I call the office to ask a question and, if I ever actually even got a reply, it was never a useful one.

Meds that were promised to be called in to the pharmacy immediately weren't called in for days.

I was frustrated, but I figured I was just overreacting. You know, crazy first time-mother-itis... I assumed all doctors' offices worked that way...

We had our 20-week ultrasound and everything looked really good. The only thing they saw was Aubrie having a slight heart murmur, but they told me that was common and they usually grow out of it. I researched vitamins and minerals that specifically help develop the baby's heart and started eating more foods that contained them just to be sure.

I became sick one week later with cramping and an upset stomach, but I didn't get worried until that Friday when I woke up with a fever. I called the office all morning, starting before office hours, and left messages asking what I needed to do. We were headed into the weekend and I didn't want to end up missing my window of opportunity to see The Doctor...

I called and called. Left message after message.

Finally I just got in my car and started driving there. They will see me today whether they want to or not. Thankfully, The Nurse called me back as I was headed that way. She told me The Doctor wanted me to go to the hospital OB floor for observation and tests. I did, and they had me pee in a cup and hooked me up to the contraction monitor.

I was having contractions. Not bad ones, but they were there. The hospital OB nurse said that was pretty common. A manual check of my cervix showed it was still closed. The hospital OB nurse told me my pee came back normal, but The Doctor was ordering an antibiotic for a UTI and sending me home, with an appointment not that coming Monday, but the Monday after. (The Doctor was going on vacation, see. That's why she didn't come by the hospital to check me out, and why she wouldn't see me the following week. She'd see me after she got back from vacation. A completely reasonable explanation. If she was going on vacation, then I must be fine.) The hospital OB nurse told me I didn't have to go home, that I could stay for longer. She actually tried to persuade me to stay. I told her I would do what The Doctor said... Obviously she's The Doctor and she knows what she's talking about.

The next week (you know, the week The Doctor was on vacation,) I had a baby.

Could my premature delivery have been prevented, or at least have been postponed a few weeks? I don't know. There's absolutely no way of knowing. Do I look at the situation emotionally and with perfect hindsight? You bet. Do I feel the doctor was negligent? I don't know. I don't know what's "normal," or what's common practice. I don't think she went above and beyond my any means, but was probably super-comfortable in her role of doing the minimum that is medically required. I've heard several times now that everybody is basically treated the same until they have a premature delivery or a dead baby. Until then we're all just paranoid mothers...

But you know what? I could have pushed. I could have fought. I could have changed doctors. I could have asked more questions and required better answers. Those are things I didn't know, but now I do know. And those are things I can pass on to other mothers.

Doctors aren't always right. Go with your instinct. If you don't like your doctor, or if your doctor doesn't go above and beyond to meet your needs and help you feel comfortable and educated, then FIND A NEW DOCTOR.

And even though this is mostly directed towards mothers-to-be, it's really true in any case. I learned from my pregnancy and that shaped how I then interacted with Daxton's doctors and with my next OB during my pregnancy with Tyler. I think most of the "good" doctors appreciate my stance; some other doctors, not so much. (I'll have to tell you guys one day about some of my least favorite former doctors. It's almost comical... now.)

I am now an educated consumer. I learned the hard way. I hope you don't have to.

Thursday, November 26, 2009

Thanksgiving

Eight years ago today in Starkville, MS, I turned around and saw Shep on his knee and thought he had fallen. As I was laughing at him (I mean bending to help him up) he laughed, too, and asked me to marry him. There was so much to be thankful for!

The next Thanksgiving we were married. I tried my first Thanksgiving dinner in our tiny little blue carpeted, brown-panelled, glitter-on-the-ceiling first rental in Panama City... And we laughed again. There was so much to be thankful for!

That next Thanksgiving Shep had started his own business, I was finally out of school, and we were building a new house closer to Destin. We felt like real grown-ups :) There was so much to be thankful for!

That next year the company I worked for in Destin closed down and we had to chose between Texas, Oklahoma, Tampa, or Tennessee. We celebrated that Thanksgiving in our brand new home in TN. Thankfully our old house in FL sold a few weeks later. There was so much to be thankful for!

Thanksgiving of 2006 was uneventful. We ate, Shep hunted, I enjoyed some quiet time away from work. Life was normal and peaceful. There was so much to be thankful for!

The next year we were just barely pregnant, with what we did not know yet to be twins :) I had a new job that was flexible and perfect for a new mom. There was so much to be thankful for!

And then came 2008. There was so much to be upset, and saddened, and angry about. But on Thanksgiving, our little kung-fu ninja had his first bites of turkey and sweet potatoes, and less than a week later he was home with us. Not to mention our newest little bun-in-the-oven we wouldn't find out about for three more days :) And, yes, there was so very much to be thankful for.

Which brings us to today. Shep and I are comfortably employed in a time when so many are not. We are finally settled, and mostly unpacked, in our new home where we plan on staying until our nest is empty. As for now, our nest is full... Full of love, full of life... and full of testosterone :) We're surrounded by family and friends who, while maybe not always close in proximity, are always close in our hearts.

There is so much to be thankful for.

Now, on a different note, I want to make mention of a couple of friends who are going through difficult times right now. Please lift up in prayer my friend Kathy and her family. Kathy lost her sister and her mother last week in unrelated illnesses, and this is a very hard time for them. Please also lift up my friend Sheila's 10-month-old great-niece. She was injured in a freak accident at home this week and is now in Cincinnati Children's Hospital with 3rd-degree burns covering her entire body. The doctors are hopeful, but she is battling a bacterial infection and can use all the prayers she can get.

Thanks all.

Also, to update on our prayer requests from last week, Mr. Jack and his mom fought the swine flu and the flu lost :) No hospitalizations for baby, or for mom :) Baby Rosemary did not get to have her trach removed due to swollen adenoids, and hopefully the adenoids can come out and the trach can then go. There's a plan in place... But time can pass so slowly some times! Please continue praying for her and her family! Also, Miss Mary Farris's surgery went as well as it could, however, the doctors were not able to do everything now... She's going to have to grow a little more and then they'll try again...

Please keep on praying for my favorite preemies, along with all the millions of other preemies out there, for a safe, healthy, wonderful, amazing holiday season! And don't forget those who struggle during the holidays... Most of us have too many blessings to count... If we passed a few of them on we probably wouldn't even miss them...

Love you all, and HAPPY THANKSGIVING!

Wednesday, November 25, 2009

My shortest (and most awesome) post ever...

Daxton, the boy who should probably never walk, took his first steps today :)

Many, many thanks and praises :)

Tuesday, November 24, 2009

And now for something (almost) completely different...

Except that I just wrote a post about dirty butts... But this one refers to much cuter butts :)

We have a new bathtime song at our house, and I feel it is my duty to share. Really, it's my gift to you...

It should be sung to the same tune as "There's a skeeter on my..."
...
Well, you can sing it to whatever tune you like.

Here goes...

If your wiener's getting cleaner call for Dad (Hey, Dad!)
If your wiener's getting cleaner call for Dad (Hey, Dad!)
If your wiener's getting cleaner
Don't call for Mom 'cause I ain't seen 'er!
If your wiener's getting cleaner call for Dad (Hey, Dad!)

Yes, I know. And you're welcome :)

What I'm Not Thankful For.

Hi all,

Yes, it's very close to Thanksgiving and I should be posting a "What I'm Thankful for" post with all of the millions of wonderful things I have to be thankful for; however, this is not a "Thankful" post. This is a soap-box post. I'm writing this as I go, so it may be a little graphic, and it might offend you. All I can say is, if it does offend you, then maybe you're one of the people who should be reading this.

I am a fairly new mother, and I am one who does not take her children out very often. There are bugs out there, and my children don't need them quite yet, so we don't just go out. We go to doctors' appointments with our children. Other than that, they're pretty much home.

That being said, I'm a grown-up now, and I have been going into public restrooms for a long time. Thankfully I typically have the option of choosing from any of the stalls when I go, so if one looks pretty questionable I can just hop in the next one. No biggie.

Bathrooming with a child in a stroller is new for me. There is only one stall for mom + stroller.

Thus begins my soapboax.

We had a doctor's appointment yesterday, and it was just me and Daxton. I'm completely useless without my caffeine in the mornings, and I admit a big, fat Sonic coke in the mornings gets me through more days than it should. Yesterday was one of those days, so we take a potty break right before the appointment. The bathroom was clean and nice and all was well in the world.

Well, 20 minutes later when we're still waiting for the doc I was doing the pee-pee dance again so Daxton and I trek back to that same bathroom, in a hurry since the doctor would be ready for us any minute.

We met her coming out the door. I knew the second I saw her. Yes, stereotyping is bad, but I knew. One look in the one stall mom + stroller would fit in, and my fears were confirmed.

I'm guessing most of you who read this blog are adults, and most of us are responsible for cleaning our own homes. They might not be spotless, but there are just some hygienic standards that most people aspire to.

I also get that there are physical and cognitive conditions which might render a person unable to maintain their own hygiene or the cleanliness of the environment. It happens, and others should be understanding of that.

However, if you are a grown woman, or man, who is physically and cognitively able to do so, then there is absolutely no excuse for leaving a public restroom in any worse condition than it was when you entered.

This bathroom stall had gone from nice and clean to poop on the seat, pee on the seat, and pee on the floor. There were black specks on the toilet seat, and, you got it, she had not bothered to flush.

There is NO EXCUSE. If nothing else, if she was unable to clean up after herself for some reason, she should have stopped me at the door and said, "Excuse me, there's a mess in there and I'm going to contact housekeeping."

Of course that didn't happen.

At any rate, that's the end of my soap box. I'm still disgusted. Thanks for listening.

Thursday, November 19, 2009

Do you feel sorry for him yet?

Oh, Daxton. The sick, sick child...

Sick sense of humor, that is...

Our poor, pitiful child with chronic lung disease has learned to work the system. Yes, he now coughs when we ask him if he's okay. Such a cute little manipulator...


Tuesday, November 17, 2009

It's Prematurity Awareness Day! **update**

Hello all. For those of you who are not "in the know," (like I wasn't until about 5 minutes ago... bad preemie mom! baaaad preemie mom!) today is Prematurity Awareness Day.

So, instead of throwing a bunch of statistics your way I'm going to throw you two big universal facts instead...

1. Prematurity stinks. For society, for mom, for dad, for baby. Especially for baby.

2. You can help.

In honor of Prematurity Awareness Day, I created a "virtual band" for Aubrie and Daxton and made a donation in their names to the March of Dimes. You can click this link if you would like to also make a donation in their names, or to create your own band for another special boy or girl out there...

And just as an aside, please all say a quick prayer for Baby Jack, a preemie friend who has recently been exposed to H1N1... He's running a low grade fever and the parents are scared. Please take a moment to lift them up and pray for no flu (and a few uneventful days for his parents!) Also please say a prayer for Baby Rosemary... Remember her? She's going in to possibly get her trach removed tomorrow! Lots of prayers for a successful procedure! And I just found out Baby Mary Farris, our NICU neighbor at Vandy, is going in for surgery #7 tomorrow... Big prayers for her and her family!

**Update**
Baby Jack does have H1N1. Looks like his mom may have it, too. He's only been out of the NICU for a couple of months... Please pray they can treat this at home with no hospital visits for Jack, and that they both have speedy recoveries!

Thanks again all, for you support for our family as we travel this road and for all the other families that you help without even knowing...